23andMe's interim CEO Joseph Selsavage recently told Congress that roughly 1.9 million of customers (or about 15% of its 15 million users) have already asked to delete their genetic data amid the company's Chapter 11 bankruptcy and looming sale to pharmaceutical maker Regeneron.
I was one of 23andMe's early adopters. I wanted to trace my French and Ashkenazi Jewish roots, and in its early days, the service provided fascinating family-history insights. But after nearly two decades of growth -- peaking at a $6 billion valuation in 2021 -- 23andMe is a shell of its former self. Its pivot to drug research and development failed to gain traction, and a major October 2023 data breach torpedoed any remaining customer trust, driving the company to lose over 99% of its value by 2024.
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Now, with millions of genetic profiles -- including mine -- caught in bankruptcy limbo, there are worries about who will control this vast trove of sensitive DNA data. California's attorney general has even urged customers to delete their records, pointing out that, unlike medical information protected under HIPAA, direct-to-consumer genomic data lacks strong federal privacy safeguards.
If you're uneasy about your genetic information falling into the wrong hands -- or tied indefinitely to pharmaceutical research you didn't explicitly authorize -- you still have the power to delete it. Here's how.
What you'll need:A 23andMe account and the ability to access your account either from a PC or a mobile device.
Before deleting anything, let's download your data for safekeeping. Log in to 23andMe, go to Settings > 23andMe Data > View, and select the reports, raw data, or family-tree files you want to preserve.
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If you can't find Settings, just select your username and choose Settings from the dropdown. This opens the central hub where you can manage everything from report preferences to privacy controls.
In the same 23andMe Data section, click Permanently Delete Data. You'll receive an email titled "23andMe Delete Account Request." Click the confirmation link to start the irreversible deletion process.
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Once confirmed, your online access is immediately revoked and the deletion process begins.
If you opted to store your saliva sample, you'll want to visit Settings > Preferences and request sample destruction. This instructs 23andMe's lab to discard any remaining material.
Finally, under Settings > Research & Product Consents, withdraw permission for your data and sample to be used in future studies. Note that data already used in published research cannot be pulled back.
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23andMe says it will retain a minimal set of information about you -- such as your date of birth and a log of your deletion request -- to satisfy audit and legal record-keeping obligations.
Your genome contains personal data including ancestry, health predispositions, and familial connections. In bankruptcy, these immutable records could be sold to buyers with unknown privacy safeguards.
No. Once you confirm "Permanently Delete All Records" via the confirmation email, the process is irreversible and your account is permanently closed.
To comply with legal retention requirements, 23andMe keeps some metadata about your account -- including your account email, DOB, sex, a deletion-request record, and even communications "related to inquiries or complaints and legal agreements."
The company filed for Chapter 11 protection in late March 2025, citing weak kit sales and mounting operational costs. A reputational fallout from a 2023 data breach likely eroded profitability as well, all of which led to the restructuring move.
Regeneron Pharmaceuticals won the auction with a$256 million bid. It intends to apply the data toward drug-development.
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